Osteopetrosis

• Who to Contact
• Where to Go to Chat with Others
• Learn More About It
• Web Sites
• Search Google for "Osteopetrosis"

Who to Contact

International Osteopetrosis Association
P.O. Box 261
Fishers, Indiana 46038
Phone: (317) 773-6786
Toll Free: (866) 220-2751
http://www.internationalosteopetrosisassociation.org/

The mission of the International Osteopetrosis Association is to support research that is committed to finding treatments and cures for disorders in bone metabolism and to assist those who are afflicted with such disorders with emphasis on those who have autosomal dominant osteopetrosis. We are committed to funding medical and scientific research, educational programs and creating forums for the exchange of ideas in order to benefit those with such disorders.

Where to Go to Chat with Others

• Osteonews
  Osteonews is a list for families of children or adults who have been diagnosed with osteopetrosis, a rare genetic bone disease. We hope to share our experiences in dealing with osteopetrosis and its effects on our children, including bone marrow transplants, alternative treatments and vision loss, a common secondary diagnosis.

Learn More About It

• Questions and Answers About Osteopetrosis
• Osteopetrosis Frequently Asked Questions
• Osteopetrosis information from St. Jude Children's Hospital
• Osteopetrosis
  From the American Academy of Family Physicians
• Osteopetrosis Overview from eMedicine
• Osteopetrosis from OMIM
• Osteopetrosis from Wheeless Textbook of Orthopedics

Web Sites

• International Osteopetrosis Association
• The Paget Foundation
• Osteopetrosis Web Site

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Last Updated June 19, 2009 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_osteopetrosis.htm