Opitz Family Network (OFN)
PO Box 515
Grand Lake, Colorado, USA 80447
See also: Opitz -G, G, BBB, Opitz-Frias, or Hypertelorism-Hypospadias Syndromes.
The Opitz Family Network provides families of children with Opitz Syndrome support and encouragement through referrals newsletters and easy to read articles. Their goal is to communicate and share successes and ideas about feeding, surgeries, oral motor and speech therapies, and all the other individual concerns parents have for their special children. They have local support groups, and provide parent matching upon request through a database. OFN Publishes the Opitz Family Newsletter, on an occasional basis and has brochures available that contain information about the network and the syndrome. The Network offers an new parent packet that contains a glossary of terms, descriptions, and the newsletter. Write of phone for further information.