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Multiple Enchondroma Diseases

Related Disorders: Ollier's Disease, Multiple Enchondromatosis, Multiple Cartilaginous, Ollier Osteochondromatosis, Unilateral Chrondromatosis, or Maffucci Syndrome.

* Who to Contact
* Where to Go to Chat with Others
* Learn More About It
* Web Sites
* Search Google for "Multiple Enchondroma Diseases"


Who to Contact

American Association of Multiple Enchondroma Diseases (previously Ollier/Maffucci Self-Help Group)
357 Redwood Road
Venice, FL 34293
(941) 492-5117
Web: http://www.aamed.net/

Founded in 1998, incorporated in 2002 as a not-for-profit corporation and registered as a tax exempt organization with the US Internal Revenue Service, AAMED is comprised of individuals with Ollier's disease, Maffucci's syndrome, enchondromatosis, their families, and physicians. AAMED is THE source for news and information about bone tumor diseases, research and services for adults and children with Enchondromatosis, Multiple Enchondroma, Ollier's disease, Maffucci's syndrome, and their families.On this site, you'll find links to our quarterly newsletters, message board, pen-pal program for children, latest research information, and much more. We invite interested persons to become part of group. Click on the membership link for more information on joining us.


Where to Go to Chat with Others


Learn More About It


Web Sites


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Last Updated 4/18/2008 by rowley@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_olli.htm