Oxalosis and Hyperoxaluria Foundation (OHF)
201 E. 19th Street, #12E
New York, NY 10003
Related Conditions: Primary Hyperoxaluria Type 1 and 2, Acquired Hyperoxaluria, Absorptive or Enteric Hyperoxaluria.
The Oxalosis and Hyperoxaluria Foundation disseminates information to physicians to help make available and standardize treatment plans, support research by tracking patients and by fund-raising, provide support and information on current treatments for patients and their families. They provide parent-to-parent matching through the exchange of addresses and telephone numbers.
OHF publishes a quarterly newsletter, In Touch, that is included in membership and a brochure, "Understanding Hyperoxaluria and Oxalosis," that provides information about the condition and the organization. They are in the process of developing a new parent packet and establishing a bibliography of books and articles that will be available to members.
The Foundation is in the process of collecting information on physicians and researchers who treat/study the condition , and will provide referrals to other resources. Additionally, they host a conference which will be held in conjunction with American Society of Nephrologists Conference. Call for further information.