Also see: Multiple Sclerosis; Canavan Disease; Krabbe's Disease; Metachromatic Leukodystrophy; Adrenoleukodystrophy; Lesch-Nyhan Leigh's Disease; Parkinson's Disease; and Alzheimer's Disease
Organization for Myelin Disorders Research and SupportThis is an international network that was founded in 1996. It provides a communication network among families (and professionals that work with them) who affected by hypomyelination and myelin deficient disorders. It also aims to increase awareness, find causes and treatments, and fund research. In addition, it provides information and referrals, phone support, advocacy, and a newsletter.
P.O. Box 54759
Cincinnati, OH 45254-0759