Muscular Dystrophy Association
3300 E. Sunrise Drive
Tucson, Arizona, USA 85718
1-800-572-1717
Email: mda@mdausa.org
Web: http://www.mdausa.org/MDA fights forty neuromuscular diseases through a worldwide research effort, a nationwide program of medical services, and professional and public health education. MDA's Medical Advisory and Scientific Advisory committees review projects that will increase knowledge in the neuromuscular field and may lead to treatments or cures for muscular dystrophy and related disorders. MDA's Task force studies all aspects of genetic defects implicated directly or indirectly in neuromuscular diseases. Their patient services program provides comprehensive medical services to children and adults with neuromuscular diseases.
MDA clinics provide diagnosis and follow-up care from specialists. Through local chapters MDA patients receive many other direct services, including assistance with purchase and repair of wheelchairs, recreation at summer camps, and selected transportation assistance. MDA publishes and distributes a wide variety of print and audiovisual materials to promote public understanding and provide information to parents and caregivers of MDA patients. They offer a quarterly newsletter, MDA Reports, a publication "Quest", and a booklet for siblings,"Hey! I'm Here Too!" along with other brochures and fact sheets.