Klinefelter Syndrome

• Who to Contact
• Where to Go to Chat with Others
• Learn More About It
• Web Sites
• Search Google for "Klinefelter Syndrome"

Who to Contact

Klinefelter Syndrome and Associates
11 Keats Court
Coto de Caza, CA 92679
888-999-9428 (toll-free)
http://www.genetic.org/

Klinefelter Syndrome and Associates has a mission to enhance the quality of KS individuals' lives by assisting in their right of early diagnosis and treatment. They work together to insure KS individuals are treated with dignity. They are advocates for KS individuals and families through active participation in the professional, educational, and research communities at national, state, and local levels. KSA fosters mutual support and create an environment conducive to open communication among our membership.

 

Where to Go to Chat with Others

• KS & Associates Mailing lists
  Information on the many KS discussion groups support by KS & Associates.
• 49variant · The 49ers Group
  This is a list available only to those parents who have a son with the 49 variant. This list has been formed to provide support, education and information. It is a restricted list and members must be approved by the moderator.
• AAKSIS
  The AAKSIS E-Mail List has been formed to provide discussion, support, and fellowship for the international community of those medically diagnosed as being XXY (and variants), or having Klinefelter Syndrome, their supporters, family members, spouses, medical, and psychological advisors.
  
• Klinefelter Syndrome Listservs
  List of lists from the Klinefelter Support Group Web Site
  
• XXYTalk.com: Klinefelter Syndrome Support Forums
  Provides a website for all those who are either XXY themselves (or some variant) or keenly interested in XXY (Klinefelter Syndrome) to share information, ideas, and just simply communicate with one another.

Learn More About It

• Understanding Klinefelter Syndrome: A Guide for XXY Males and Their Families
• Klinefelter Syndrome from eMedicine
  
• What is KS
  From Klinefelter Organisation UK
• About 47XXY/Klinefelter Syndrome
• Klinefelter Syndrome
  National Institute of Child Health and Human Development
• Klinefelter syndrome
  From Genetics Home Reference
• MedlinePlus: Klinefelter's Syndrome

Web Sites

• Klinefelter Syndrome and Associates Web Site
• Klinefelter Syndrome Support Group Home Page
• American Association for Klinefelter Syndrome Information and Support
• Klinefelter Syndrome - A Parent's View
• Klinefelter Organisation - Formerly the Klinefelter's Syndrome Club UK (KSCUK)

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Last Updated June 8, 2009 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_klin.htm