Kabuki Syndrome

• Who to Contact
• Where to Go to Chat with Others
• Learn More About It
• Web Sites
• Search Google for "Kabuki Syndrome"

Who to Contact

Kabuki Syndrome Network
Dean & Margot Schmiedge
8060 Struthers Cr.
Regina, Sask. S4Y 1J3 Canada
(306) 543-8715
E-mail: margot@kabukisyndrome.com 
Web: http://www.kabukisyndrome.com/

The Kabuki Syndrome Network (KSN) has two main goals: to act as both a source and an index of information on Kabuki syndrome (KS) and to help families support each other by sharing their experiences.

 

Where to Go to Chat with Others

• KSN_L Discussion List

Learn More About It

• Facts about Kabuki
  
• What is Kabuki Syndrome?
  
• Kabuki Syndrome information from OMIM
  
• ENT Syndrome Clinic
• Kabuki syndrome: Encyclopedia of Genetic Disorders
• My Child Has Kabuki Syndrome
  From Children's Hospital Boston

Web Sites

• Kabuki Syndrome Network
  
• SAKKS Supporting Aussie Kids with Kabuki Syndrome
• Australian Kabuki Syndrome Association

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Last Updated June 8, 2009 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_kabuki.html