Jeune's Syndrome
Synonym: Asphyxiating Thoracic Dystrophy
See Also: Growth Disorders
Who to Contact
- Jeunes Syndrome Family Foundation
P.O. Box 261181,
Highlands Ranch, CO 80163
(303) 683-1508
http://www.jeunesfamily.org/
-
-
- Our mission is to assist families of children with Jeune’s Syndrome in locating information and access to the parent support network. We also intend to financially assist families that need to travel with their child out of town/state for rib expansion surgeries.
-
Where to Go to Chat with Others
-
We are unaware of any discussion forums specifically for this
diagnosis. If you know of a discussion group for Jeune's please let us know.
Learn More About It
Web Sites
Who to Contact