Holoprosencephaly

• Who to Contact
• Where to Go to Chat with Others
• Learn More About It
• Web Sites
• Search Google for "Holoprosencephaly"

Who to Contact

Carter Centers for Research in Holoprosencephaly
c/o Texas Scottish Rite Hospital
P.O. Box 190567
2222 Welborn Street
Dallas, TX 75219-9982
Tel: 214-559-8411
Fax: 214-559-7835
E-mail: hpe@tsrh.org
Web: http://www.stanford.edu/group/hpe

The goal of the Carter Centers is to evaluate and treat as many patients afflicted with HPE and their families as possible in order to improve lives and conquer this disorder. The Carter Centers plan to attain this goal by supporting research and educational efforts and encouraging collaboration among investigators in the fields of neurology, genetics, and related disciplines.

Where to Go to Chat with Others

• Holoprosencephaly
  This list is intended as a support group for parents and families of children with Holoprosencephaly.
• Holoprosencephaly Loss Support
  This group is designed for support of the parents/grandparents etc. that have lost a child to holoprosencephaly.
  
  
  

Learn More About It
 

• Holoprosencephaly Information Sheet
  From the National Institutes of Health
• HPE Parents' Handbook
• Holoprosencephaly Overview
  From Gene Reviews
• Holoprosencephaly information from OMIM
• Information About Holoprosencephaly

Web Sites

• Families for Hope
• The Carter Centers for Brain Research in Holoprosencephaly and Related Malformations

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Last Updated June 17, 2010 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_holoprosencephaly.html