Who to Contact
National Institutes of Health
National Digestive Diseases Information Clearinghouse
2 Information Way
Bethesda MD 20892-3570
(301) 907-8906 (fax)
International Foundation for Functional Gastrointestinal Disorders, Inc. (IFFGD)
P.O. Box 170864
Milwaukee, WI 53217–8076
Phone: 1–888–964–2001 or 414–964–1799
IFFGD has been working with patients (both adults and children), families, physicians, practitioners, investigators, employers, regulators, and others to broaden understanding about gastrointestinal disorders and support or encourage research.
Where to Go to Chat with Others
Welcome to the International Rare Disease Support Network's (www.raredisorders.com) support group for people affected by 'Hirschsprung's Disease.' This support group is open to anyone interested in making friends, sharing information and support for people affected by this rare 'orphan' disorder.
- Hircshprung's Support Network
The Hirschsprung's & Motility Disorders Support Network (HMDSN) is an organisation for people whose kids suffer from various motility disorders such as Hirschsprung's Disease, Neuronal Intestinal Dysplasia, Intestinal Pseudo-Obstruction, GERD, Short Bowel Syndrome, and the like.
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