The mission of the American Hemochromatosis Society (AHS) is to educate and support the victims of HFE-associated hereditary hemochromatosis (genetic iron overload) and their families as well as educate the medical community on the latest research on Hereditary Hemochromatosis (HH). AHS' aim is to identify through genetic testing, the 43 million+ Americans who unknowingly carrying the single or double gene mutations for HH which puts them at risk for loading excess iron.
AHS recognizes and envisions that it is possible now and in the future to prevent needless deaths, disability, organ damage, very costly joint replacements, chemoembolization and surgery for liver cancer, and organ transplants caused by hereditary hemochromatosis/iron overload through routine/universal screening for HH of the American public, DNA newborn genetic screening for HH for all children in America, and establishment of universal guidelines for diagnosis and treatment for HH in minor children and adults
The Iron Overload Diseases Association has a mission to lead the search for millions of Americans and other nationals who have undiagnosed hemochromatosis (iron overload) and to prevent the resulting severe health problems and avoidable deaths.
The Association also supports on-line discussion groups, moderated by experts in the field.
Iron Disorders Institute is a non-profit, common ground resource center. It provides information about iron-related disorders and disease that has been reviewed by physicians, researchers and scientists expert in the following: hemochromatosis, acquired iron overload, juvenile hemochromatosis, African siderosis, thalassemia, porphyria cutanea tarda, sideroblastic anemia, iron-deficiency anemia, and anemia of chronic disease.