Goldenhar Syndrome Support Network Society
Post Office Box 751112
Las Vegas, NV 89136
(888) 486-1209
(702) 769-9264
http://www.goldenharsyndrome.org/Our goal is to provide Support and Information to families and individuals involved with Goldenhar Syndrome and its many related conditions. AmeriFace, formerly AboutFace USA, was founded in 1991 to provide educational and emotional support to persons born with craniofacial anomalies and their families. The organization soon expanded to also serve persons with acquired facial differences due to burns, trauma and disease, and in 2004 partnered with cleftAdvocate under the same corporate umbrella. In 2007, we welcomed the Crouzon Support Network and the Goldenhar Syndrome Support Network to the AmeriFace family of networking and educational resources. In 2008, we welcomed the Treacher Collins Connection (TCConnection). Read about the history of these parent/patient-run support organizations and their founders here.