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Glutaric Acidemia

 

Who to Contact

International Organization of Glutaric Acidemia
RD #4, Box 299-A
Blairsville, PA 15717
Phone: 724-459-0179
E-mail: mmetil@helicon.net
http://helpioga.org/

The International Organization of Glutaric Acidemia (IOGA) is an international, voluntary, and non-profit organization dedicated to promoting early detection, preventing neurological damage, and assisting in the treatment and rehabilitation of those affected by Glutaric Acidemia Type I (GA1) and other neurological diseases. Established in 1995 and consisting of approximately 100 members, IOGA engages in patient advocacy and support, offers family networking services, promotes research, offers medical referrals, and engages in patient education. Educational materials include medical journal article reprints, brochures, this web site, and a regular newsletter.

 

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