FRAXA Research Foundation, Inc.
45 Pleasant St.
Newburyport, MA 01950
(978) 462-1866
Fax: (978) 463-9985
E-mail: info@fraxa.org
Web: http://www.fraxa.org/FRAXA was founded in 1994 by three parents of children with Fragile X, Katie Clapp, Michael Tranfaglia MD, and Kathy May, to support scientific research aimed at finding a treatment and a cure for Fragile X. Fragile X research is drastically underfunded, considering its high prevalence, prospects for a cure, and the promise that this research holds for advancing understanding of other disorders like autism, Alzheimer's disease, and X-linked mental retardation.
FRAXA funds grants and fellowships at universities all over the world. We have funded more than $7.5 million dollars in top-notch science. FRAXA's overhead expenses have always been just 9% or less of income, as we have just two paid staff and hundreds of volunteer parents. Since FRAXA was founded, the Fragile X field has grown tremendously, due in large part to our grass-roots efforts. You can help us accomplish much more.
The National Fragile X Foundation
PO Box 37
Walnut Creek, California 94597
925-938-9300
800-688-8765 (toll-free)
925-938-9315 (fax)
Web: http://www.fragilex.org/
The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X.The Foundation provides telephone consultation; basic informational packet; medical and genetic services referral; educational advocacy; legislative advocacy;
100 regional service chapters nationally and internationally; family assistance grants; research grants; local, national, and international conference sponsorship;
a newsletter; and educational resources (books, audio, video).
Facts
About Fragile X Syndrome
National Institute of Child Health and Human Development
Fragile X Syndrome
eMedicine Article