FG Syndrome Family Alliance, Inc.
946 NW Circle Blvd., #290
Corvallis, OR 97330
The FG Syndrome Family Alliance, Inc. is a true grassroots organization. It was formed through the work of families around the world who had loved ones with the FG Syndrome. It began in 1996 with about five families, and now our network extends to over 150 active families. We recently achieved preliminary recognition as a non-profit organization under Section 501c3 of the Internal Revenue code.
All work for the FGSFA, Inc. is done through the generous work of volunteers. Newsletters, the family album, our brochure, introductory packet, electronic resources, regional coordinators, conference planning, and other activities are the result of literally hundreds upon hundreds of volunteer hours. We are always open to new ideas, and greet new volunteers with open arms! We have been very fortunate to have the donated time of professionals to help us with the "business" end of our work. To date, we have received free services from a publicist, an attorney, an accountant, and others.
The internet has allowed us to get to know each other well. Even though we are spread throughout the world, many of us count other FG Families among our closest friends and confidants. The Listserv allows us to have constant contact with one and other, and enables us to share new ideas and support with each other.