Cornelia de Lange Syndrome

• Who to Contact
• Where to Go to Chat with Others
• Learn More About It
• Web Sites
• Search Google for "Cornelia de Lange Syndrome"

Who to Contact

The Cornelia de Lange Syndrome Foundation, Inc.
302 West Main Street, #100
Avon, CT 06001
860-676-8166
860-676-8337 - Fax
800-223-8355
Web: http://www.cdlsusa.org/

The Cornelia de Lange Syndrome Foundation is a family support organization which exists to reach out, provide help and offer hope to everyone touched by this genetic condition. Our primary purpose is to offer support on a personal basis and we encourage you to let us know how we can help you and the person in your life with CdLS.

 

Where to Go to Chat with Others

• CDLS-KIDS
  An e-mail discussion list for parents, caregivers, extended family, and friends of children with CDLS.

Learn More About It

• Facts About Cornelia de Lange Syndrome
• About CDLS
  
• Cornelia de Lange Syndrome - eMedicine
  
• CDLS -Genetics Home Reference
• Cornelia de Lange Syndrome information from OMIM
  
• Education Protocol for Cornelia de Lange Syndrome

Web Sites

• Cornelia de Lange Syndrome Foundation Web Site
• Cornelia de Lange Syndrome - UK
  
• Cornelia de Lange Syndrome - Australasia
• Jessica's Place
• Amanda's Room

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Last Updated June 11, 2010 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_cdls.htm