Congenital Central Hypoventilation Syndrome Family Support Network
E-mail: VanderlaanM@Hartwick.Edu
Web: http://www.cchsnetwork.org/
The mission of the CCHS Family Support Network is to educate families, medical professionals and care-givers about CCHS and to advocate for optimal care for our children diagnosed with CCHS. We are an international group, working to connect CCHS families around the world in the effort of increasing awareness, interest in CCHS research and sharing news about new technologies used in the medical care of our children.