The Association for Bladder Exstrophy Children (ABC)
3075 First Street
La Salle, Michigan
USA 48145
866-300-2222 Toll Free in U.S.
Web: http://www.bladderexstrophy.com
The Association for the Bladder Exstrophy Community is an international support group network comprising individuals with bladder exstrophy, local parent-exstrophy support groups, and health care providers who work with patients and families living with bladder exstrophy. We collect resources, talent, and information to assist patients and families living with bladder exstrophy to help them master the medical and psychosocial issues relating to exstrophy.
The ABC accomplishes its support function primarily through ABC Update, its quarterly newsletter. ABC Update provides a forum in which issues, questions, and concerns about exstrophy can be discussed. We are also involved in conducting support group meetings across the country to allow for patient and family interaction, guest speakers, and other educational and supportive functions. We endeavor to provide informational resources and emotional support to patients and families living with bladder exstrophy in order to empower them to cope with the psychosocial and medical issues of this problem.