Alexander Disease

Who to Contact
Learn More About It
Web Sites
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Waisman Center Alexander Disease Research and Programs

Who to Contact

United Leukodystrophy Foundation
2304 Highland Drive
Sycamore, IL 60178
800-728-5483
E-mail: ulf@tbcnet.com
Web: http://www.ulf.org/
The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for health care providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies. Leukodystrophies are a group of genetic nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted.

Learn More About It

Alexander Disease - Summary for Parents
From the Alexander Disease Project at the Waisman Center, University of Wisconsin
Alexander Disease
From Online Mendelian Inheritance in Man (OMIM)
NINDS Alexander Disease Information Page
From the National Institute of Neurological Disorders and Stroke

Web Sites

United Leukodystrophy Foundation
Alexander Disease Patient/Family Resources
From the College of Community Health Sciences at the University of Alabama
Contact a Family - United Kingdom
CLIMB - Children Living with Inherited Metabolic Diseases - United Kingdom

Waisman Center Alexander Disease Research and Programs

Alexander Disease Project
Waisman Center, University of Wisconsin

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