Albinism & Hypopigmentation

• Who to Contact
• Where to Go to Chat with Others
• Learn More About It
• Web Sites
• Search Google for "Albinism & Hypopigmentation"

Who to Contact

National Organization for Albinism and Hypopigmentation (NOAH)
PO Box 959
East Hampstead, NH 03826-0959
800 473-2310
603 887-2310
E-mail: webmaster@albinism.org
Web: http://www.albinism.org

NOAH provides information and support regarding albinism and related conditions, promotes public and professional education about these conditions, and encourages research and funding that will lead to improved diagnosis and management of albinism. NOAH provides networking for those with related albinism, such as minority groups.

NOAH publishes a newsletter, NOAH News, twice yearly, as well as information bulletins on particular topics. They also provide a network of local chapters and contact persons, and do referrals to state rehabilitation agencies, providers of equipment and materials.

Where to Go to Network with Others

• Albinism On-Line Community
  At the NOAH web site - a place where people and families affected by albinism and others interested in learning more about the condition can ask questions and share experiences.
  
  

Learn More About It

• What is Albinism?
  From the National Organization for Albinism and Hypopigmentation
• Albinism Overview
  University of Maryland Medical Center
• Albinism Overview
  From eMedicine
• Albinism Information
  Mayo Clinic
• Frequently asked questions about Albinism
  From Albinism Fellowship - United Kingdom
• Information for Teachers of Students with Albinism
  From the National Organization for Albinism and Hypopigmentation
• Understanding Albinism
  From Kid's Health at Nemours
• MedlinePlus Medical Encyclopedia: Albinism
  National Institutes of Health
• Parent Perspective
  From Parent of a Child with Albinism
• Sun Protection Fact Sheet (pdf)
  From Albinism Fellowship - United Kingdom
• Albinism
  Vision For Tomorrow Foundation
  
  
  

Web Sites

• National Organization for Albinism and Hypopigmentation [NOAH]
• Albinism World Alliance (AWA)
• Albinism in Popular Culture
• Albinism Fellowship - United Kingdom
• Albinism Trust - New Zealand
• Albinism Fellowship of Australia
• Albinism - Through the Eyes of Bianca

Back to [A - B]
[Family Village Home]
[Library] [Coffee Shop] [Hospital] [Shopping Mall] [Post Office] [Bookstore] [Research]
[Living with Disability] [Disability Culture] [School] [Legal Issues] [Recreation & Leisure] [Family Resources] [Information]

Last Updated June 2, 2009 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_albi.htm